Memorial Day Update

(From Jack)

I’m happy to report that we are back home from the hospital. What we thought would be a day or two of hospitalization turned into a five-day stay. In fact, when we went to the doctor’s office, we had no idea I would be sent to the hospital. For those of you who like the full picture, here it is! For others, the bottom line is that I’m home, feeling much better, and filled with happiness for the gift of another day of life! Now, you can delete the rest!

Since our return from M.D. Anderson, my pain and nausea levels have risen, pretty dramatically. Last Wednesday night I was up all night, fighting both. A new kind of pain was present. Anita and I decided that the pain was primarily from the growth of the tumor (pressing on other organs) and perhaps some blockage. We had been warned that one of the things we needed to be alert to was the occlusion of the major bile duct.

After a brief visit with the doctor, he sent me to the emergency room at Saint Joseph’s hospital. I remained in emergency from mid-afternoon, Thursday, until nearly 11 p.m. before I was moved to a room. However, they were able to ease the pain and the nausea.

After a series of tests on Friday, the doctor concluded that the common bile duct was blocked causing the gall bladder to be greatly distended. The bilirubin count was extremely elevated almost to the point of sepsis. The doctor said the preferred treatment was to open the blockage through the placement of a stint in this duct, but because of the size and location of the tumor, this might not be a possibility. This would mean that a drain with an external bag would be installed. He said that I would then have to deal with the bag until the end, thus the preferred route would be the stint. So, we went into surgery, uncertain about the outcome.

The procedure was done under sedation, but I was not “put to sleep.” They used a long needle/catheter and went in through the liver, through the common hepatic bile duct, all the way to the small intestine. The doctor was able to insert a stint and open up the entire common bile duct, all the way from the liver, the gall bladder, the pancreas, to the small intestine.

The pain management folk have altered the regimen for pain control, including using a “patch” as well as other goodies including a medicated lollipop. All of my doctors have told me that their main goal is to keep me as pain-free (and nausea-free) as possible, and I join them in this quest!

I don’t think I realized, until the last few hours, the severity of my condition over the past few days. With the blockage of the bile duct, the greatest danger was that sepsis would set-in and I would be hard-pressed to fight it off.

Once again, your prayers have made a huge difference in my struggle. I rejoice in your friendship, celebrate the goodness and faithfulness of God, and look forward to the wonderful future that is unfolding!